Lemtrada: round two, day three

I'm home now, in my bed, where I intend to stay for the next couple of days. I slept well last night but woke at 6am with my mind racing - the steroids are obviously still affecting me. I'm not looking forward to the crash when I don't get my steroid fix today! I feel… Continue reading Lemtrada: round two, day three

Lemtrada: round two, day two

Apparently blog posts need pictures, but I couldn't find a picture to illustrate today so the picture up there ^ is a view of my reading materials for my time in hospital plus the steroid aftermath detritus of an empty Mentoes packet. After yesterday's interminable waiting, today ran like clockwork. In fact so much like… Continue reading Lemtrada: round two, day two

Lemtrada: round two, day 0

I'm in my hospital bed, with a cannula in my right hand (memo to self, if I ever have this done again, or if my cannula gets resited, get it put in my left (non-dominant) hand. It's really annoying having a cannula in your writing hand). I'm in the same ward, and the same bed… Continue reading Lemtrada: round two, day 0

Lemtrada: my top tips

I can hardly believe it but it's almost a year since I had the first round of Lemtrada treatment for my relapsing-remitting MS, which means it's nearly time for round two. The time has flown by, but strangely it feels as though my treatment was a lifetime ago, almost as if it happened to someone… Continue reading Lemtrada: my top tips

The listeria diet

In my time waiting for Lemtrada (alemtuzumab) treatment, I've been part of a very useful Facebook group with members who have had, or are having, or are thinking about having Lemtrada. It's a great place to get support and advice about a drug which has many possible side-effects and treatment regimens that differ wildly from… Continue reading The listeria diet

Checking in: three months after Lemtrada round one

The peonies in my garden are flowering for the first time since I planted them three years ago, so there's no doubt summer is almost here. The last three months since Lemtrada have passed in a blur, and I can't quite believe we're more than halfway through May. It feels like a good time to… Continue reading Checking in: three months after Lemtrada round one

101 Ways to be Happy #3: a day on the South Bank

Today is the three month anniversary of my discharge from hospital following my Lemtrada treatment. Since it was decided that I would have Lemtrada, a year and a few years ago, I've been on a special anti-listeria diet. It's been a challenge - no chilled ready-to-eat food, no unwashed salad or fruit, no cured meat… Continue reading 101 Ways to be Happy #3: a day on the South Bank