Smiling through life with MS
I'm home now, in my bed, where I intend to stay for the next couple of days. I slept well last night but woke at 6am with my mind racing - the steroids are obviously still affecting me. I'm not looking forward to the crash when I don't get my steroid fix today! I feel… Continue reading Lemtrada: round two, day three
In my time waiting for Lemtrada (alemtuzumab) treatment, I've been part of a very useful Facebook group with members who have had, or are having, or are thinking about having Lemtrada. It's a great place to get support and advice about a drug which has many possible side-effects and treatment regimens that differ wildly from… Continue reading The listeria diet
It's getting a bit like Groundhog Day in here. I woke up at 4.30 this morning and just couldn't get back to sleep, I think thanks to the steroids rather than any disturbance on the ward. I put my Calm app on my phone and listened to a story about the Nordland Express in Norway,… Continue reading Lemtrada: round one, day three
It's been a long time coming, nine months to be exact, but finally I am here in hospital ready to start Lemtrada tomorrow. It's not lost on me that I could have gestated a baby in the time I've waited for my lymphocytes to recover from the bashing that two and a half years of… Continue reading The last wait
November already, 2018 has nearly been and gone, and I'm not at all where I thought I'd be. Back in May, when I stopped taking Tecfidera, I thought I'd have treatment with Lemtrada in June, and be back at work - a better, non-relapsing version of myself - by the end of summer. But I'm… Continue reading Limbo-land
Falling & Laughing 