Lemtrada: round two, day three

I'm home now, in my bed, where I intend to stay for the next couple of days. I slept well last night but woke at 6am with my mind racing - the steroids are obviously still affecting me. I'm not looking forward to the crash when I don't get my steroid fix today! I feel… Continue reading Lemtrada: round two, day three

Lemtrada: round two, day two

Apparently blog posts need pictures, but I couldn't find a picture to illustrate today so the picture up there ^ is a view of my reading materials for my time in hospital plus the steroid aftermath detritus of an empty Mentoes packet. After yesterday's interminable waiting, today ran like clockwork. In fact so much like… Continue reading Lemtrada: round two, day two

Lemtrada: round two, day 0

I'm in my hospital bed, with a cannula in my right hand (memo to self, if I ever have this done again, or if my cannula gets resited, get it put in my left (non-dominant) hand. It's really annoying having a cannula in your writing hand). I'm in the same ward, and the same bed… Continue reading Lemtrada: round two, day 0

Self-care

Before Christmas, I was given the gift of a massage. Something I never have the time or money to arrange for myself. It was blissful, a combination of Swedish massage techniques and lymphatic drainage (lymphatic drainage being apparently beneficial for MS - though I'm not sure of the science on that). It was a rare… Continue reading Self-care

Lemtrada: my top tips

I can hardly believe it but it's almost a year since I had the first round of Lemtrada treatment for my relapsing-remitting MS, which means it's nearly time for round two. The time has flown by, but strangely it feels as though my treatment was a lifetime ago, almost as if it happened to someone… Continue reading Lemtrada: my top tips