It's just over five weeks after I finished round two of Lemtrada, and I'm feeling a lot better than I was. I've returned to work - well, at least not 'to' work per se as I'm working from home. That's something I was planning to do anyway as part of a phased return, building up… Continue reading Lemtrada: round two, five weeks later
Tag: multiple sclerosis
Lemtrada: round two, day two
Apparently blog posts need pictures, but I couldn't find a picture to illustrate today so the picture up there ^ is a view of my reading materials for my time in hospital plus the steroid aftermath detritus of an empty Mentoes packet. After yesterday's interminable waiting, today ran like clockwork. In fact so much like… Continue reading Lemtrada: round two, day two
Lemtrada: round two, day one
Lemtrada: Round two, day one
Lemtrada: round two, day 0
I'm in my hospital bed, with a cannula in my right hand (memo to self, if I ever have this done again, or if my cannula gets resited, get it put in my left (non-dominant) hand. It's really annoying having a cannula in your writing hand). I'm in the same ward, and the same bed… Continue reading Lemtrada: round two, day 0
Waiting again
I finished round one of Lemtrada a year ago tomorrow, so tomorrow is the day I'm going into hospital to start round two. This time I'll only have three days of infusions, and according to others who have done it it should be easier. But it still won't feel great. I can't really remember last… Continue reading Waiting again
Self-care
Before Christmas, I was given the gift of a massage. Something I never have the time or money to arrange for myself. It was blissful, a combination of Swedish massage techniques and lymphatic drainage (lymphatic drainage being apparently beneficial for MS - though I'm not sure of the science on that). It was a rare… Continue reading Self-care
I’m a fighter, not a lover
The other afternoon, I got on the tube to go home from work. I was tired, I didn't feel great, my leg was particularly wobbly. I sat on the bench on the platform as I waited for the train to arrive as I wasn't up to standing. After a few minutes the train pulled in… Continue reading I’m a fighter, not a lover
Lemtrada: my top tips
I can hardly believe it but it's almost a year since I had the first round of Lemtrada treatment for my relapsing-remitting MS, which means it's nearly time for round two. The time has flown by, but strangely it feels as though my treatment was a lifetime ago, almost as if it happened to someone… Continue reading Lemtrada: my top tips
Seeing myself
Middle age is something I'm still not ready for, even though I'm right in the thick of it. I have got to the point where I don't readily remember my age, and every time I have to recall it I have to take part in a 'Play Your Cards Right'-style guessing game in my mind:… Continue reading Seeing myself
Priority seats; or How to be Kind
For a long time before I became disabled and was diagnosed with multiple sclerosis I used the tube and buses in London on an almost daily basis. I would consider myself a kind and thoughtful traveller, who would always stand up to let someone who needed to sit down have a seat. But from the… Continue reading Priority seats; or How to be Kind
Falling & Laughing 