Smiling through life with MS
Oh dear. I've left it rather a long time to blog about day five of Lemtrada - I'm now over nine weeks since I was discharged from hospital. I don't really have an excuse for the lateness of this post - for the first week or so I didn't feel up to much, and then… Continue reading Lemtrada: round one, day five
It's day four of Lemtrada, I have one more night in hospital and one more night of treatment, and the rash is here! I currently look like I have the neck of a 16-year old boy after his first experiment with his dad's razor. It started with itchy arms when I woke up this morning,… Continue reading Lemtrada: round one, day four
It's getting a bit like Groundhog Day in here. I woke up at 4.30 this morning and just couldn't get back to sleep, I think thanks to the steroids rather than any disturbance on the ward. I put my Calm app on my phone and listened to a story about the Nordland Express in Norway,… Continue reading Lemtrada: round one, day three
My last two entries were quite short and I didn't go into much detail because I was tired and a bit too spaced-out to get my thoughts in order. So I'm writing this a bit earlier in the day, and hopefully I will remember all the things I meant to say! I'm now hooked up… Continue reading Lemtrada: round one, day two
It's been a long time coming, nine months to be exact, but finally I am here in hospital ready to start Lemtrada tomorrow. It's not lost on me that I could have gestated a baby in the time I've waited for my lymphocytes to recover from the bashing that two and a half years of… Continue reading The last wait
November already, 2018 has nearly been and gone, and I'm not at all where I thought I'd be. Back in May, when I stopped taking Tecfidera, I thought I'd have treatment with Lemtrada in June, and be back at work - a better, non-relapsing version of myself - by the end of summer. But I'm… Continue reading Limbo-land
"What is that which has one voice and yet becomes four-footed and two-footed and three-footed?" This summer was challenging. In April I started relapsing, my fatigue becoming overwhelming and my walking getting markedly worse. I tried high-dose steroids to treat the relapse for the first time, but they didn't make any difference to my symptoms… Continue reading The Riddle of the Sphinx
Falling & Laughing 