Priority seats; or How to be Kind

For a long time before I became disabled and was diagnosed with multiple sclerosis I used the tube and buses in London on an almost daily basis. I would consider myself a kind and thoughtful traveller, who would always stand up to let someone who needed to sit down have a seat. But from the… Continue reading Priority seats; or How to be Kind

The administrative burden of chronic illness

When you're diagnosed with a chronic illness, i.e. an illness that you're going to have for the rest of your life, there is an initial period of shock and disruption. This might last for weeks or months, but eventually you find that life settles down and you adjust to the reality of living with your… Continue reading The administrative burden of chronic illness

Routines

It's a hot day today, and I love it. Autumn used to be my favourite season, I loved the smell of woodsmoke and the excuse to wrap up warm, hating the summer quandary of trying stay cool without revealing too much of my alternately milk-white and angrily scarlet sunburnt skin. Now I'm middle-aged, I don't… Continue reading Routines

The listeria diet

In my time waiting for Lemtrada (alemtuzumab) treatment, I've been part of a very useful Facebook group with members who have had, or are having, or are thinking about having Lemtrada. It's a great place to get support and advice about a drug which has many possible side-effects and treatment regimens that differ wildly from… Continue reading The listeria diet

Checking in: three months after Lemtrada

The peonies in my garden are flowering for the first time since I planted them three years ago, so there's no doubt summer is almost here. The last three months since Lemtrada have passed in a blur, and I can't quite believe we're more than halfway through May. It feels like a good time to… Continue reading Checking in: three months after Lemtrada

101 Ways to be Happy #3: a day on the South Bank

Today is the three month anniversary of my discharge from hospital following my Lemtrada treatment. Since it was decided that I would have Lemtrada, a year and a few years ago, I've been on a special anti-listeria diet. It's been a challenge - no chilled ready-to-eat food, no unwashed salad or fruit, no cured meat… Continue reading 101 Ways to be Happy #3: a day on the South Bank

Labels

The seventies, when I was born, is an almost unrecognisable place. Back then, even into the eighties, attitudes in Britain towards people of non-white ethnicity, non-British origins, non-heterosexual orientation, or disabled people were largely acceptably offensive by today's standards. Terms that are now understood to be deeply insulting were an unremarkable part of the everyday… Continue reading Labels

Lemtrada: day four

It's day four of Lemtrada, I have one more night in hospital and one more night of treatment, and the rash is here! I currently look like I have the neck of a 16-year old boy after his first experiment with his dad's razor. It started with itchy arms when I woke up this morning,… Continue reading Lemtrada: day four