Lemtrada: my top tips

I can hardly believe it but it's almost a year since I had the first round of Lemtrada treatment for my relapsing-remitting MS, which means it's nearly time for round two. The time has flown by, but strangely it feels as though my treatment was a lifetime ago, almost as if it happened to someone… Continue reading Lemtrada: my top tips

A day at the Bluedot

A couple of weeks ago, my husband and I and some friends went to the Bluedot festival at Jodrell Bank in Cheshire. I was slightly daunted to be having my first festival experience in nine years, and my first with mobility issues, but all went (almost - of which more later) smoothly and it was… Continue reading A day at the Bluedot

Priority seats; or How to be Kind

For a long time before I became disabled and was diagnosed with multiple sclerosis I used the tube and buses in London on an almost daily basis. I would consider myself a kind and thoughtful traveller, who would always stand up to let someone who needed to sit down have a seat. But from the… Continue reading Priority seats; or How to be Kind

The administrative burden of chronic illness

When you're diagnosed with a chronic illness, i.e. an illness that you're going to have for the rest of your life, there is an initial period of shock and disruption. This might last for weeks or months, but eventually you find that life settles down and you adjust to the reality of living with your… Continue reading The administrative burden of chronic illness

Routines

It's a hot day today, and I love it. Autumn used to be my favourite season, I loved the smell of woodsmoke and the excuse to wrap up warm, hating the summer quandary of trying stay cool without revealing too much of my alternately milk-white and angrily scarlet sunburnt skin. Now I'm middle-aged, I don't… Continue reading Routines

The listeria diet

In my time waiting for Lemtrada (alemtuzumab) treatment, I've been part of a very useful Facebook group with members who have had, or are having, or are thinking about having Lemtrada. It's a great place to get support and advice about a drug which has many possible side-effects and treatment regimens that differ wildly from… Continue reading The listeria diet