It's been two years, seven months, and four days since I last wrote a post on this blog. It feels at once much much longer than that, and much much shorter. All that time I just couldn't write, couldn't string a sentence together, couldn't think of anything to say. I'd written about having Lemtrada, about… Continue reading Two and a half years that never happened
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Lemtrada: round two, five weeks later
It's just over five weeks after I finished round two of Lemtrada, and I'm feeling a lot better than I was. I've returned to work - well, at least not 'to' work per se as I'm working from home. That's something I was planning to do anyway as part of a phased return, building up… Continue reading Lemtrada: round two, five weeks later
Lemtrada: round two, day three
I'm home now, in my bed, where I intend to stay for the next couple of days. I slept well last night but woke at 6am with my mind racing - the steroids are obviously still affecting me. I'm not looking forward to the crash when I don't get my steroid fix today! I feel… Continue reading Lemtrada: round two, day three
Lemtrada: round two, day two
Apparently blog posts need pictures, but I couldn't find a picture to illustrate today so the picture up there ^ is a view of my reading materials for my time in hospital plus the steroid aftermath detritus of an empty Mentoes packet. After yesterday's interminable waiting, today ran like clockwork. In fact so much like… Continue reading Lemtrada: round two, day two
Lemtrada: round two, day one
Lemtrada: Round two, day one
Lemtrada: round two, day 0
I'm in my hospital bed, with a cannula in my right hand (memo to self, if I ever have this done again, or if my cannula gets resited, get it put in my left (non-dominant) hand. It's really annoying having a cannula in your writing hand). I'm in the same ward, and the same bed… Continue reading Lemtrada: round two, day 0
Waiting again
I finished round one of Lemtrada a year ago tomorrow, so tomorrow is the day I'm going into hospital to start round two. This time I'll only have three days of infusions, and according to others who have done it it should be easier. But it still won't feel great. I can't really remember last… Continue reading Waiting again
Self-care
Before Christmas, I was given the gift of a massage. Something I never have the time or money to arrange for myself. It was blissful, a combination of Swedish massage techniques and lymphatic drainage (lymphatic drainage being apparently beneficial for MS - though I'm not sure of the science on that). It was a rare… Continue reading Self-care
The kindness of strangers
I have always depended on the kindness of strangersBlanche Dubois, A Streetcar Named Desire After I wrote about MS making me an angry and slightly resentful person, feeling like I need to be on the defensive all the time, I thought I should redress the balance. So today I'm writing about how, despite sometimes encountering… Continue reading The kindness of strangers
I’m a fighter, not a lover
The other afternoon, I got on the tube to go home from work. I was tired, I didn't feel great, my leg was particularly wobbly. I sat on the bench on the platform as I waited for the train to arrive as I wasn't up to standing. After a few minutes the train pulled in… Continue reading I’m a fighter, not a lover
Falling & Laughing 