Lemtrada: round two, five weeks later

It's just over five weeks after I finished round two of Lemtrada, and I'm feeling a lot better than I was. I've returned to work - well, at least not 'to' work per se as I'm working from home. That's something I was planning to do anyway as part of a phased return, building up… Continue reading Lemtrada: round two, five weeks later

Lemtrada: round two, day two

Apparently blog posts need pictures, but I couldn't find a picture to illustrate today so the picture up there ^ is a view of my reading materials for my time in hospital plus the steroid aftermath detritus of an empty Mentoes packet. After yesterday's interminable waiting, today ran like clockwork. In fact so much like… Continue reading Lemtrada: round two, day two

Lemtrada: round two, day 0

I'm in my hospital bed, with a cannula in my right hand (memo to self, if I ever have this done again, or if my cannula gets resited, get it put in my left (non-dominant) hand. It's really annoying having a cannula in your writing hand). I'm in the same ward, and the same bed… Continue reading Lemtrada: round two, day 0

Self-care

Before Christmas, I was given the gift of a massage. Something I never have the time or money to arrange for myself. It was blissful, a combination of Swedish massage techniques and lymphatic drainage (lymphatic drainage being apparently beneficial for MS - though I'm not sure of the science on that). It was a rare… Continue reading Self-care

Lemtrada: my top tips

I can hardly believe it but it's almost a year since I had the first round of Lemtrada treatment for my relapsing-remitting MS, which means it's nearly time for round two. The time has flown by, but strangely it feels as though my treatment was a lifetime ago, almost as if it happened to someone… Continue reading Lemtrada: my top tips

Priority seats; or How to be Kind

For a long time before I became disabled and was diagnosed with multiple sclerosis I used the tube and buses in London on an almost daily basis. I would consider myself a kind and thoughtful traveller, who would always stand up to let someone who needed to sit down have a seat. But from the… Continue reading Priority seats; or How to be Kind

The administrative burden of chronic illness

When you're diagnosed with a chronic illness, i.e. an illness that you're going to have for the rest of your life, there is an initial period of shock and disruption. This might last for weeks or months, but eventually you find that life settles down and you adjust to the reality of living with your… Continue reading The administrative burden of chronic illness