It's just over five weeks after I finished round two of Lemtrada, and I'm feeling a lot better than I was. I've returned to work - well, at least not 'to' work per se as I'm working from home. That's something I was planning to do anyway as part of a phased return, building up… Continue reading Lemtrada: round two, five weeks later
Tag: lemtrada rash
Lemtrada: round two, day three
I'm home now, in my bed, where I intend to stay for the next couple of days. I slept well last night but woke at 6am with my mind racing - the steroids are obviously still affecting me. I'm not looking forward to the crash when I don't get my steroid fix today! I feel… Continue reading Lemtrada: round two, day three
Lemtrada: round two, day two
Apparently blog posts need pictures, but I couldn't find a picture to illustrate today so the picture up there ^ is a view of my reading materials for my time in hospital plus the steroid aftermath detritus of an empty Mentoes packet. After yesterday's interminable waiting, today ran like clockwork. In fact so much like… Continue reading Lemtrada: round two, day two
Lemtrada: my top tips
I can hardly believe it but it's almost a year since I had the first round of Lemtrada treatment for my relapsing-remitting MS, which means it's nearly time for round two. The time has flown by, but strangely it feels as though my treatment was a lifetime ago, almost as if it happened to someone… Continue reading Lemtrada: my top tips
Lemtrada: round one, day five
Oh dear. I've left it rather a long time to blog about day five of Lemtrada - I'm now over nine weeks since I was discharged from hospital. I don't really have an excuse for the lateness of this post - for the first week or so I didn't feel up to much, and then… Continue reading Lemtrada: round one, day five
Lemtrada: round one, day four
It's day four of Lemtrada, I have one more night in hospital and one more night of treatment, and the rash is here! I currently look like I have the neck of a 16-year old boy after his first experiment with his dad's razor. It started with itchy arms when I woke up this morning,… Continue reading Lemtrada: round one, day four
Lemtrada: round one, day three
It's getting a bit like Groundhog Day in here. I woke up at 4.30 this morning and just couldn't get back to sleep, I think thanks to the steroids rather than any disturbance on the ward. I put my Calm app on my phone and listened to a story about the Nordland Express in Norway,… Continue reading Lemtrada: round one, day three
Falling & Laughing 