101 Ways to be Happy #3: a day on the South Bank

Today is the three month anniversary of my discharge from hospital following my Lemtrada treatment. Since it was decided that I would have Lemtrada, a year and a few years ago, I've been on a special anti-listeria diet. It's been a challenge - no chilled ready-to-eat food, no unwashed salad or fruit, no cured meat… Continue reading 101 Ways to be Happy #3: a day on the South Bank

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The seventies, when I was born, is an almost unrecognisable place. Back then, even into the eighties, attitudes in Britain towards people of non-white ethnicity, non-British origins, non-heterosexual orientation, or disabled people were largely acceptably offensive by today's standards. Terms that are now understood to be deeply insulting were an unremarkable part of the everyday… Continue reading Labels

Lemtrada: round one, day four

It's day four of Lemtrada, I have one more night in hospital and one more night of treatment, and the rash is here! I currently look like I have the neck of a 16-year old boy after his first experiment with his dad's razor. It started with itchy arms when I woke up this morning,… Continue reading Lemtrada: round one, day four

Lemtrada: round one, day three

It's getting a bit like Groundhog Day in here. I woke up at 4.30 this morning and just couldn't get back to sleep, I think thanks to the steroids rather than any disturbance on the ward. I put my Calm app on my phone and listened to a story about the Nordland Express in Norway,… Continue reading Lemtrada: round one, day three

Lemtrada: round one, day two

My last two entries were quite short and I didn't go into much detail because I was tired and a bit too spaced-out to get my thoughts in order. So I'm writing this a bit earlier in the day, and hopefully I will remember all the things I meant to say! I'm now hooked up… Continue reading Lemtrada: round one, day two

The last wait

It's been a long time coming, nine months to be exact, but finally I am here in hospital ready to start Lemtrada tomorrow. It's not lost on me that I could have gestated a baby in the time I've waited for my lymphocytes to recover from the bashing that two and a half years of… Continue reading The last wait

101 Ways to be Happy #2: thinking of spring

I had a notion that I was going to write a series of blog posts about 101 ways to stay happy in the face of whatever life throws at you, but after my first post on the subject (101 Ways to be Happy #1: five days on the Jurassic Coast), other stuff has got in… Continue reading 101 Ways to be Happy #2: thinking of spring