The last wait

It's been a long time coming, nine months to be exact, but finally I am here in hospital ready to start Lemtrada tomorrow. It's not lost on me that I could have gestated a baby in the time I've waited for my lymphocytes to recover from the bashing that two and a half years of… Continue reading The last wait

101 Ways to be Happy #2: thinking of spring

I had a notion that I was going to write a series of blog posts about 101 ways to stay happy in the face of whatever life throws at you, but after my first post on the subject (101 Ways to be Happy #1: five days on the Jurassic Coast), other stuff has got in… Continue reading 101 Ways to be Happy #2: thinking of spring

The Riddle of the Sphinx

"What is that which has one voice and yet becomes four-footed and two-footed and three-footed?" This summer was challenging. In April I started relapsing, my fatigue becoming overwhelming and my walking getting markedly worse. I tried high-dose steroids to treat the relapse for the first time, but they didn't make any difference to my symptoms… Continue reading The Riddle of the Sphinx

101 Ways to be Happy #1: five days on the Jurassic Coast

Coming to terms with a chronic, progressive illness is like a death by a thousand cuts. It's grieving, but it's not like the standard grieving process, where you pass through the five stages from denial, occasionally cycling backwards but ultimately ending up at acceptance.¬†Accepting MS is something I have to do over and over, each… Continue reading 101 Ways to be Happy #1: five days on the Jurassic Coast

Four things I’ve learned about the welfare state

I try to be positive about my life, I try to tell myself I have worth despite my illness, but sometimes things come at me out of left field that make me question whether I should bother. Yesterday I read a story in the news about Michael Forsyth, who is being asked to repay all… Continue reading Four things I’ve learned about the welfare state