Lemtrada: day four

It's day four of Lemtrada, I have one more night in hospital and one more night of treatment, and the rash is here! I currently look like I have the neck of a 16-year old boy after his first experiment with his dad's razor. It started with itchy arms when I woke up this morning,… Continue reading Lemtrada: day four

Lemtrada: day three

It's getting a bit like Groundhog Day in here. I woke up at 4.30 this morning and just couldn't get back to sleep, I think thanks to the steroids rather than any disturbance on the ward. I put my Calm app on my phone and listened to a story about the Nordland Express in Norway,… Continue reading Lemtrada: day three

Lemtrada: day two

My last two entries were quite short and I didn't go into much detail because I was tired and a bit too spaced-out to get my thoughts in order. So I'm writing this a bit earlier in the day, and hopefully I will remember all the things I meant to say! I'm now hooked up… Continue reading Lemtrada: day two

The last wait

It's been a long time coming, nine months to be exact, but finally I am here in hospital ready to start Lemtrada tomorrow. It's not lost on me that I could have gestated a baby in the time I've waited for my lymphocytes to recover from the bashing that two and a half years of… Continue reading The last wait

101 Ways to be Happy #2: thinking of spring

I had a notion that I was going to write a series of blog posts about 101 ways to stay happy in the face of whatever life throws at you, but after my first post on the subject (101 Ways to be Happy #1: five days on the Jurassic Coast), other stuff has got in… Continue reading 101 Ways to be Happy #2: thinking of spring

The Riddle of the Sphinx

"What is that which has one voice and yet becomes four-footed and two-footed and three-footed?" This summer was challenging. In April I started relapsing, my fatigue becoming overwhelming and my walking getting markedly worse. I tried high-dose steroids to treat the relapse for the first time, but they didn't make any difference to my symptoms… Continue reading The Riddle of the Sphinx

101 Ways to be Happy #1: five days on the Jurassic Coast

Coming to terms with a chronic, progressive illness is like a death by a thousand cuts. It's grieving, but it's not like the standard grieving process, where you pass through the five stages from denial, occasionally cycling backwards but ultimately ending up at acceptance.¬†Accepting MS is something I have to do over and over, each… Continue reading 101 Ways to be Happy #1: five days on the Jurassic Coast